Tuesday, July 18, 2017

7/18/2017 Update (PET Scan and Port Placement)

This morning is when we were scheduled to have the PET scan and I know many of you are waiting on a report of the results.  Late yesterday afternoon, after discussion with the Oncologist, we decided to postpone the PET scan from today to August 8th and postpone the port placement from 7/25 to 8/3.  The PET scan was originally critical due to the thought that we didn't know the primary source, but now that we know it is Ovarian cancer, the PET scan don't become as important until after the initial treatment of the primary.  The Port is needed because she cannot get so many treatments through IV over the long haul.  However, postponing it will only cause one additional treatment through IV.  Dr. Kasi assured us that neither of these things would in any way decrease his effectiveness on treating her so we made the decision to postpone them until we have insurance in August.  These decisions saved over $26,000.  There is no monetary value of Julie's life and we would never make a decision to save money that would limit in any way her ability to be treated, but the Dr. assured us it was not a problem and we felt like to be good stewards of the very generous gifts we have received to help with our medical expenses we needed to postpone these two items.

All this really means is that we have to wait until after August 8th to know for sure whether cancer is in other parts of her body, but knowing it at this time wouldn't help us in any way anyway, so we will be patient and wait.

With Much Love,
Ben

A quick note from Julie ...

Well I have made it past the 1st treatment.  I am thrilled to report that this time the only side effect I had was extreme fatigue.  I did not have any nausea.  Today I felt the best I have felt since surgery 4 weeks ago.  Ben and I even walked around the duck pond in our neighborhood 2 times.  So while I'm not planning a 5K anytime soon, it did feel great to get outside and walk around.

All of our kids came by yesterday for a visit, and brought me the sweetest gift.  A family photobook. Each child took the time to add their favorite pics, scripture verse and a sweet note to me.  How sweet and special they have all been.  I also got some extra goodies that will help pass the chemo time away.

And you folks out there--how precious you are to me.  I know of three t-shirt fundraisers, and the gofundme that are helping to help with our finances.  Yall--God does make a way!  And a big thanks for all the gifts that have been given to us through a variety of places.  We are so blessed to be loved by many.

Thanks for the words of encouragement, prayers, cards and belief!

We are believing for a miracle,

Julie

3 comments:

Tim A. Setliff said...

We are praying for you. Just so you know, I'm not planning on a 5K anytime soon either. I love you guys!

Pastor Ian said...

Hey Guys,

Your pastors are praying fervently for you! Kari and I also pray for you in our prayer time. My heart breaks as you walk through this. Your testimony of faithfulness and confidence in the Lord is truly refreshing. You are an example for others to follow. May the Lord continue to bless you and provide for all your needs during this incredibly challenging time.

Pastor Ian

Darlene Groover said...

God Bless you every step of the way through this journey.
We are praying for you and your entire family!
God's grace will show the way!